Public Information Links
Liver Disease
Alagille Syndrome Alliance
10500 SW Starr Drive
Tualatin, OR 97062
Telephone: 503-885-0455
Alpha 1 Association
2937 SW 27 Avenue, Suite 106
Miami, FL 33133
Toll Free Number: 800-521-3025
Fax: 305-648-0089
Alpha Net
2937 SW 27th Ave.
Suite 305
Coconut Grove, FL 33133
Toll Free Number: 800-577-2638
Alpha One Foundation
2937 SW 27th Avenue
Suite 302
Miami, Florida 33133
Toll Free Number: 877-2-CURE-A1
Fax: 305-567-1317
Alpha-1 Research Registry
c/o Medical University of South Carolina
Division of Pulmonary Critical Care Medicine
96 Jonathan Lucas St. STE 812-CSB
PO Box 250623
Charleston, SC 29425
Toll Free Number: 877-886-2383
Fax: 843-792-0297
American Association for the Study of Liver Diseases
1001 North Fairfax, Suite 400
Alexandria, VA 22314
Telephone: 703-299-9766
Fax: 703-299-9622
American Liver Foundation
75 Maiden Lane
Suite 603
New York, NY 10038
Toll Free Helpline: 800-GO-LIVER (465-4837)
Telephone: 212-668-1000
Fax: 212-483-8179
American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Toll Free Number: 1-866-APF-3635
Fax: 713-840-9552
Canadian Alpha-1 Antitrypsin Deficiency Registry
Toronto Hospital, Western Div.
Edith Cavell Wing, Suite 4-011
399 Bathurst Street
Toronto, Ontario M5T 2S8 Canada
Toll Free Number: 1-800-352-8186
Fax: 416-603-5020 or 416-603-0348
Canadian Association for the Study of the Liver
34 Eglinton Avenue West
Suite 323
Toronto ON M4R 2H6 Canada
Telephone: 416-847-0053
Fax: 416-847-0054
Canadian Liver Foundation
National Office:
2235 Sheppard Avenue East, Suite 1500
Toronto, ON M2J 5B5 Canada
Toll Free Number: 1-800-563-5483
Fax: 416-491-4952
CLASS (Children’s Liver Association for Support Services)
27023 McBean Parkway #126
Valencia, CA 91355
Toll Free Number: 1-877-679-8256
Children's Liver Disease Research and Education Network
Hepatitis B Foundation
3805 Old Easton Road
Doylestown, PA 18902
Telephone: 215-489-4900
Fax: 215-489-4313
Hepatitis C Society of Canada
PO Box 33544
50 Dundurn Street South
Hamilton, ON L8P 4X4 Canada
Toll Free Number: 1-800-652-HepC (4372)
Fax: 905-24-0224
Hepatitis International Foundation
504 Blick Drive
Silver Spring, MD 20904-2901
Toll Free Number: 800-891-0707
Iron Overload Diseases Association
PO Box 15857
West Palm Beach, FL 33416-5857
Telephone: 561-586-8246
PKIDs-Parents of Kids with Infectious Diseases
PO Box 5666
Vancouver, WA 98668
Toll Free Number: 877-55-PKIDS
Fax: 360-695-6941
Scientific Registry of Transplant Recipients
315 W. Huron St., Suite 360
Ann Arbor, MI 48103
Toll Free Number: 1-800-830-9664
Fax: 734-665-2103
TransWeb: Transplantation and Donation
The Northern Brewery
1327 Jones Drive, Suite 201
Ann Arbor, MI 48105
Telephone: 734-998-7314
United Network for Organ Sharing
PO Box 2484
Richmond, Virginia 23218
Patient/Public Information: 888-894-6361
Wilson’s Disease Association
1802 Brookside Drive
Wooster, OH 44691
Toll Free Number: 888-264-1450
10500 SW Starr Drive
Tualatin, OR 97062
Telephone: 503-885-0455
Alpha 1 Association
2937 SW 27 Avenue, Suite 106
Miami, FL 33133
Toll Free Number: 800-521-3025
Fax: 305-648-0089
Alpha Net
2937 SW 27th Ave.
Suite 305
Coconut Grove, FL 33133
Toll Free Number: 800-577-2638
Alpha One Foundation
2937 SW 27th Avenue
Suite 302
Miami, Florida 33133
Toll Free Number: 877-2-CURE-A1
Fax: 305-567-1317
Alpha-1 Research Registry
c/o Medical University of South Carolina
Division of Pulmonary Critical Care Medicine
96 Jonathan Lucas St. STE 812-CSB
PO Box 250623
Charleston, SC 29425
Toll Free Number: 877-886-2383
Fax: 843-792-0297
American Association for the Study of Liver Diseases
1001 North Fairfax, Suite 400
Alexandria, VA 22314
Telephone: 703-299-9766
Fax: 703-299-9622
American Liver Foundation
75 Maiden Lane
Suite 603
New York, NY 10038
Toll Free Helpline: 800-GO-LIVER (465-4837)
Telephone: 212-668-1000
Fax: 212-483-8179
American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Toll Free Number: 1-866-APF-3635
Fax: 713-840-9552
Canadian Alpha-1 Antitrypsin Deficiency Registry
Toronto Hospital, Western Div.
Edith Cavell Wing, Suite 4-011
399 Bathurst Street
Toronto, Ontario M5T 2S8 Canada
Toll Free Number: 1-800-352-8186
Fax: 416-603-5020 or 416-603-0348
Canadian Association for the Study of the Liver
34 Eglinton Avenue West
Suite 323
Toronto ON M4R 2H6 Canada
Telephone: 416-847-0053
Fax: 416-847-0054
Canadian Liver Foundation
National Office:
2235 Sheppard Avenue East, Suite 1500
Toronto, ON M2J 5B5 Canada
Toll Free Number: 1-800-563-5483
Fax: 416-491-4952
CLASS (Children’s Liver Association for Support Services)
27023 McBean Parkway #126
Valencia, CA 91355
Toll Free Number: 1-877-679-8256
Children's Liver Disease Research and Education Network
Hepatitis B Foundation
3805 Old Easton Road
Doylestown, PA 18902
Telephone: 215-489-4900
Fax: 215-489-4313
Hepatitis C Society of Canada
PO Box 33544
50 Dundurn Street South
Hamilton, ON L8P 4X4 Canada
Toll Free Number: 1-800-652-HepC (4372)
Fax: 905-24-0224
Hepatitis International Foundation
504 Blick Drive
Silver Spring, MD 20904-2901
Toll Free Number: 800-891-0707
Iron Overload Diseases Association
PO Box 15857
West Palm Beach, FL 33416-5857
Telephone: 561-586-8246
PKIDs-Parents of Kids with Infectious Diseases
PO Box 5666
Vancouver, WA 98668
Toll Free Number: 877-55-PKIDS
Fax: 360-695-6941
Scientific Registry of Transplant Recipients
315 W. Huron St., Suite 360
Ann Arbor, MI 48103
Toll Free Number: 1-800-830-9664
Fax: 734-665-2103
TransWeb: Transplantation and Donation
The Northern Brewery
1327 Jones Drive, Suite 201
Ann Arbor, MI 48105
Telephone: 734-998-7314
United Network for Organ Sharing
PO Box 2484
Richmond, Virginia 23218
Patient/Public Information: 888-894-6361
Wilson’s Disease Association
1802 Brookside Drive
Wooster, OH 44691
Toll Free Number: 888-264-1450