The Association of Pediatric Gastroenterology and Nutrition Nurses
Help & Hope for Children with Digestive Disorders GIKids
Journal of Pediatric Gastroenterology and Nutrition Journal of Pediatric Gastroenterology and Nutrition

Public Information Links

Metabolic Disease

Association for Glycogen Storage Disease
PO Box 896
Durant, IA 52747
Telephone: 563-785-6038

Carbohydrate Deficient Glycoprotein Syndrome (CDGS)
THE CDG Family Network Inc.
P.O. Box 860847
Plano, TX 75074
Toll Free Number: 800-250-5273

FOD (Fatty Acid Oxidation Disorders) Family Support Group

National Institute of Diabetes & Digestive & Kidney Diseases
Links to Endocrine and Metabolic Disease Organizations
A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health

National Urea Cycle Disorders Foundation
Toll Free Number: 800-38-NUCDF

Organic Acidemia Association, Inc.
13210 35th Avenue North
Plymouth, MN 55441
Telephone: 763-559-1797
Fax: 866-539-4060 (TOLL FREE)